@article{3014cb3aeb4c422ba6994434db32d064,
title = "What do people want to know about “Growing Up with Migraine”? Results of a preference survey of people with lived experience to guide future research",
abstract = "In recent years, emphasis has been placed on conducting headache research that is patient-centered to more explicitly incorporate the input of people who live with headache diseases. The Growing Up with Migraine Study was developed with this intention using a two-step process: 1. develop and administer a survey to identify research areas that matter most to people with adolescent migraine and/or their caregivers and 2. use the survey results to guide future secondary data analyses. This brief report summarizes the survey results from 373 individuals impacted by adolescent migraine. Findings suggested that people with history of adolescent migraine and/or their caregivers are most interested in research about migraine comorbidities and effects on psychological/social/emotional health, along with health-related outcomes and family-related topics. Future quantitative studies are planned that will explore these patient-identified priorities through secondary data analysis of an existing dataset.",
keywords = "Adolescent migraine, outcomes, research, survey",
author = "McGinley, {James S.} and Andrea Savord and Houts, {Carrie R.} and Wirth, {R. J.} and Lipton, {Richard B.} and Buse, {Dawn C.}",
note = "Funding Information: RBL has received grant support from the National Institutes of Health, the Food and Drug Administration, the National Headache Foundation, and the Migraine Research Fund. He serves as consultant, serves as an advisory board member, has received honoraria from or conducted studies funded by Alder, Abbvie/Allergan, American Headache Society, Biohaven, Eli Lilly, eNeura Therapeutics, Lundbeck, Merck, Novartis, Pfizer, and Teva, Inc. He receives royalties from Wolff{\textquoteright}s Headache, 8th Edition (Oxford University Press, 2009). He holds stock options in eNeura Therapeutics and Biohaven. Funding Information: The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This analysis funded by a grant from the National Headache Foundation. Funding Information: DCB is an employee of Vector Psychometric Group, LLC and has received grant support from the National Headache Foundation and grant support and honoraria from Allergan, Amgen, Biohaven, Lilly, Lundbeck, Novartis and Teva. She serves on the editorial board of Current Pain and Headache Reports. Publisher Copyright: {\textcopyright} International Headache Society 2021.",
year = "2021",
doi = "10.1177/03331024211038526",
language = "English (US)",
journal = "Cephalalgia",
issn = "0333-1024",
publisher = "SAGE Publications Ltd",
}