The development of The Bronx Community Research Review Board

A pilot feasibility project for a model of community consultation

Francisco Martin del Campo, Joann Casado, Paulette Spencer, Alvin H. Strelnick

Research output: Contribution to journalArticle

8 Citations (Scopus)

Abstract

Background: The Bronx Community Research Review Board (BxCRRB) is a community-academic partnership (CAP) between the Albert Einstein College of Medicine and The Bronx Health Link (BHL). Rather than asking clinical investigators to create their own individual process de novo, we have developed an innovative, structural approach to achieve community consultation in research planning, implementation, and dissemination that involves and educates the public about research. Objectives: To collaboratively develop (1) an independent research review board of volunteer community residents and representatives that tests a model of community consultation, dialogue, and "community-informed consent" by reviewing community-based research proposals; and (2) to increased understanding of and participation in clinical research in the Bronx. Methods: (1) Recruiting members from the Health and Human Services committees of community boards, focus groups, and community health events; (2) interviewing and selecting members based on community involvement, experiences, availability, and demographics of the Bronx; (3) training members in bioethics and research methods; and (4) facilitating meetings and discussions between clinical researchers and the BxCRRB for research review and consultation. Results: There is substantial interest among Bronx residents in participating in the BxCRRB. The BxCRRB provided feedback to researchers to ensure the protection of participants' rights, to improve research design by promoting increased accountability to the community, and expanded its scope to include earlier stages of the research process. Conclusion: The BxCRRB is a viable model for community consultation in research, but more time for implementation and evolution is needed to improve its review practices and ensure community input at all stages of the research process.

Original languageEnglish (US)
Pages (from-to)341-352
Number of pages12
JournalProgress in Community Health Partnerships: Research, Education, and Action
Volume7
Issue number3
DOIs
StatePublished - 2013

Fingerprint

community research
pilot project
Referral and Consultation
Research
community
research process
research planning
Research Personnel
health
Third-Party Consent
resident
Research Design
bioethics
Bioethics
Social Responsibility
Health
research method
Focus Groups
Informed Consent
dialogue

Keywords

  • Community consultation
  • Community informed consent
  • Community research review
  • Community-academic partnership
  • Community-based participatory research
  • Health disparities

ASJC Scopus subject areas

  • Health(social science)
  • Education
  • Sociology and Political Science

Cite this

The development of The Bronx Community Research Review Board : A pilot feasibility project for a model of community consultation. / del Campo, Francisco Martin; Casado, Joann; Spencer, Paulette; Strelnick, Alvin H.

In: Progress in Community Health Partnerships: Research, Education, and Action, Vol. 7, No. 3, 2013, p. 341-352.

Research output: Contribution to journalArticle

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