Abstract
Background: The Bronx Community Research Review Board (BxCRRB) is a community-academic partnership (CAP) between the Albert Einstein College of Medicine and The Bronx Health Link (BHL). Rather than asking clinical investigators to create their own individual process de novo, we have developed an innovative, structural approach to achieve community consultation in research planning, implementation, and dissemination that involves and educates the public about research. Objectives: To collaboratively develop (1) an independent research review board of volunteer community residents and representatives that tests a model of community consultation, dialogue, and "community-informed consent" by reviewing community-based research proposals; and (2) to increased understanding of and participation in clinical research in the Bronx. Methods: (1) Recruiting members from the Health and Human Services committees of community boards, focus groups, and community health events; (2) interviewing and selecting members based on community involvement, experiences, availability, and demographics of the Bronx; (3) training members in bioethics and research methods; and (4) facilitating meetings and discussions between clinical researchers and the BxCRRB for research review and consultation. Results: There is substantial interest among Bronx residents in participating in the BxCRRB. The BxCRRB provided feedback to researchers to ensure the protection of participants' rights, to improve research design by promoting increased accountability to the community, and expanded its scope to include earlier stages of the research process. Conclusion: The BxCRRB is a viable model for community consultation in research, but more time for implementation and evolution is needed to improve its review practices and ensure community input at all stages of the research process.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 341-352 |
| Number of pages | 12 |
| Journal | Progress in Community Health Partnerships: Research, Education, and Action |
| Volume | 7 |
| Issue number | 3 |
| DOIs | |
| State | Published - 2013 |
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Keywords
- Community consultation
- Community informed consent
- Community research review
- Community-academic partnership
- Community-based participatory research
- Health disparities
ASJC Scopus subject areas
- Health(social science)
- Education
- Sociology and Political Science
Cite this
The development of The Bronx Community Research Review Board : A pilot feasibility project for a model of community consultation. / del Campo, Francisco Martin; Casado, Joann; Spencer, Paulette; Strelnick, Alvin H.
In: Progress in Community Health Partnerships: Research, Education, and Action, Vol. 7, No. 3, 2013, p. 341-352.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - The development of The Bronx Community Research Review Board
T2 - A pilot feasibility project for a model of community consultation
AU - del Campo, Francisco Martin
AU - Casado, Joann
AU - Spencer, Paulette
AU - Strelnick, Alvin H.
PY - 2013
Y1 - 2013
N2 - Background: The Bronx Community Research Review Board (BxCRRB) is a community-academic partnership (CAP) between the Albert Einstein College of Medicine and The Bronx Health Link (BHL). Rather than asking clinical investigators to create their own individual process de novo, we have developed an innovative, structural approach to achieve community consultation in research planning, implementation, and dissemination that involves and educates the public about research. Objectives: To collaboratively develop (1) an independent research review board of volunteer community residents and representatives that tests a model of community consultation, dialogue, and "community-informed consent" by reviewing community-based research proposals; and (2) to increased understanding of and participation in clinical research in the Bronx. Methods: (1) Recruiting members from the Health and Human Services committees of community boards, focus groups, and community health events; (2) interviewing and selecting members based on community involvement, experiences, availability, and demographics of the Bronx; (3) training members in bioethics and research methods; and (4) facilitating meetings and discussions between clinical researchers and the BxCRRB for research review and consultation. Results: There is substantial interest among Bronx residents in participating in the BxCRRB. The BxCRRB provided feedback to researchers to ensure the protection of participants' rights, to improve research design by promoting increased accountability to the community, and expanded its scope to include earlier stages of the research process. Conclusion: The BxCRRB is a viable model for community consultation in research, but more time for implementation and evolution is needed to improve its review practices and ensure community input at all stages of the research process.
AB - Background: The Bronx Community Research Review Board (BxCRRB) is a community-academic partnership (CAP) between the Albert Einstein College of Medicine and The Bronx Health Link (BHL). Rather than asking clinical investigators to create their own individual process de novo, we have developed an innovative, structural approach to achieve community consultation in research planning, implementation, and dissemination that involves and educates the public about research. Objectives: To collaboratively develop (1) an independent research review board of volunteer community residents and representatives that tests a model of community consultation, dialogue, and "community-informed consent" by reviewing community-based research proposals; and (2) to increased understanding of and participation in clinical research in the Bronx. Methods: (1) Recruiting members from the Health and Human Services committees of community boards, focus groups, and community health events; (2) interviewing and selecting members based on community involvement, experiences, availability, and demographics of the Bronx; (3) training members in bioethics and research methods; and (4) facilitating meetings and discussions between clinical researchers and the BxCRRB for research review and consultation. Results: There is substantial interest among Bronx residents in participating in the BxCRRB. The BxCRRB provided feedback to researchers to ensure the protection of participants' rights, to improve research design by promoting increased accountability to the community, and expanded its scope to include earlier stages of the research process. Conclusion: The BxCRRB is a viable model for community consultation in research, but more time for implementation and evolution is needed to improve its review practices and ensure community input at all stages of the research process.
KW - Community consultation
KW - Community informed consent
KW - Community research review
KW - Community-academic partnership
KW - Community-based participatory research
KW - Health disparities
UR - http://www.scopus.com/inward/record.url?scp=84884467316&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84884467316&partnerID=8YFLogxK
U2 - 10.1353/cpr.2013.0037
DO - 10.1353/cpr.2013.0037
M3 - Article
VL - 7
SP - 341
EP - 352
JO - Progress in Community Health Partnerships: Research, Education, and Action
JF - Progress in Community Health Partnerships: Research, Education, and Action
SN - 1557-0541
IS - 3
ER -