Evaluating a Volunteer Cancer Support Service

Linda J. Edgar, Jean Remmer, Zeev Rosberger, Bruce D. Rapkin

Research output: Contribution to journalArticle

9 Citations (Scopus)

Abstract

Hope and Cope, a voluntary self-help organization for cancer patients and their families, was evaluated as part of a randomized controlled clinical trial of newly diagnosed patients with breast or colon cancer. Measures of psychosocial distress, functional well-being, and optimism were evaluated four months after diagnosis (Time 1) and eight months later (Time 2). There were differences between the users and nonusers at Time 1: Users of Hope and Cope had greater needs but became more satisfied regarding resolution of their needs at Time 2 than did nonparticipants. The outcome of physical well-being was significantly better for those who took part in Hope and Cope. Participants of voluntary support organizations appear to make appropriate choices on the basis of their needs. Issues of patients' preference have not been given sufficient attention in psychosocial oncology research and may influence the results of such studies.

Original languageEnglish (US)
Pages (from-to)53-72
Number of pages20
JournalJournal of Psychosocial Oncology
Volume21
Issue number1
DOIs
StatePublished - 2003
Externally publishedYes

Fingerprint

Hope
Volunteers
Neoplasms
Organizations
Patient Preference
Colonic Neoplasms
Randomized Controlled Trials
Breast Neoplasms
Research

Keywords

  • Evaluation research
  • Newly diagnosed patients
  • Program users and nonusers
  • Voluntary support services

ASJC Scopus subject areas

  • Psychology(all)
  • Oncology
  • Social Psychology
  • Public Health, Environmental and Occupational Health

Cite this

Evaluating a Volunteer Cancer Support Service. / Edgar, Linda J.; Remmer, Jean; Rosberger, Zeev; Rapkin, Bruce D.

In: Journal of Psychosocial Oncology, Vol. 21, No. 1, 2003, p. 53-72.

Research output: Contribution to journalArticle

Edgar, Linda J. ; Remmer, Jean ; Rosberger, Zeev ; Rapkin, Bruce D. / Evaluating a Volunteer Cancer Support Service. In: Journal of Psychosocial Oncology. 2003 ; Vol. 21, No. 1. pp. 53-72.
@article{0d3d0c4d789b42548bddba6da289cec9,
title = "Evaluating a Volunteer Cancer Support Service",
abstract = "Hope and Cope, a voluntary self-help organization for cancer patients and their families, was evaluated as part of a randomized controlled clinical trial of newly diagnosed patients with breast or colon cancer. Measures of psychosocial distress, functional well-being, and optimism were evaluated four months after diagnosis (Time 1) and eight months later (Time 2). There were differences between the users and nonusers at Time 1: Users of Hope and Cope had greater needs but became more satisfied regarding resolution of their needs at Time 2 than did nonparticipants. The outcome of physical well-being was significantly better for those who took part in Hope and Cope. Participants of voluntary support organizations appear to make appropriate choices on the basis of their needs. Issues of patients' preference have not been given sufficient attention in psychosocial oncology research and may influence the results of such studies.",
keywords = "Evaluation research, Newly diagnosed patients, Program users and nonusers, Voluntary support services",
author = "Edgar, {Linda J.} and Jean Remmer and Zeev Rosberger and Rapkin, {Bruce D.}",
year = "2003",
doi = "10.1300/J077v21n01_03",
language = "English (US)",
volume = "21",
pages = "53--72",
journal = "Journal of Psychosocial Oncology",
issn = "0734-7332",
publisher = "Routledge",
number = "1",

}

TY - JOUR

T1 - Evaluating a Volunteer Cancer Support Service

AU - Edgar, Linda J.

AU - Remmer, Jean

AU - Rosberger, Zeev

AU - Rapkin, Bruce D.

PY - 2003

Y1 - 2003

N2 - Hope and Cope, a voluntary self-help organization for cancer patients and their families, was evaluated as part of a randomized controlled clinical trial of newly diagnosed patients with breast or colon cancer. Measures of psychosocial distress, functional well-being, and optimism were evaluated four months after diagnosis (Time 1) and eight months later (Time 2). There were differences between the users and nonusers at Time 1: Users of Hope and Cope had greater needs but became more satisfied regarding resolution of their needs at Time 2 than did nonparticipants. The outcome of physical well-being was significantly better for those who took part in Hope and Cope. Participants of voluntary support organizations appear to make appropriate choices on the basis of their needs. Issues of patients' preference have not been given sufficient attention in psychosocial oncology research and may influence the results of such studies.

AB - Hope and Cope, a voluntary self-help organization for cancer patients and their families, was evaluated as part of a randomized controlled clinical trial of newly diagnosed patients with breast or colon cancer. Measures of psychosocial distress, functional well-being, and optimism were evaluated four months after diagnosis (Time 1) and eight months later (Time 2). There were differences between the users and nonusers at Time 1: Users of Hope and Cope had greater needs but became more satisfied regarding resolution of their needs at Time 2 than did nonparticipants. The outcome of physical well-being was significantly better for those who took part in Hope and Cope. Participants of voluntary support organizations appear to make appropriate choices on the basis of their needs. Issues of patients' preference have not been given sufficient attention in psychosocial oncology research and may influence the results of such studies.

KW - Evaluation research

KW - Newly diagnosed patients

KW - Program users and nonusers

KW - Voluntary support services

UR - http://www.scopus.com/inward/record.url?scp=0142184511&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=0142184511&partnerID=8YFLogxK

U2 - 10.1300/J077v21n01_03

DO - 10.1300/J077v21n01_03

M3 - Article

VL - 21

SP - 53

EP - 72

JO - Journal of Psychosocial Oncology

JF - Journal of Psychosocial Oncology

SN - 0734-7332

IS - 1

ER -