Development of a Hydroxyurea Decision Aid for Parents of Children with Sickle Cell Anemia

Lori E. Crosby, Ashley Walton, Lisa M. Shook, Russell E. Ware, Marsha Treadwell, Kay L. Saving, Maria Britto, James Peugh, Emily McTate, Suzette Oyeku, Cara Nwankwo, William B. Brinkman

Research output: Contribution to journalArticle

3 Scopus citations

Abstract

National evidence-based guidelines recommend offering hydroxyurea to patients with sickle cell anemia 9 months of age and older using shared decision making, but offer no strategies to aid implementation. We developed a hydroxyurea multicomponent decision aid via a needs assessment, clinic observations, and iterative feedback to address parent decision needs and promote a discussion between clinicians and parents. A total of 75 parents and 28 clinicians participated across all phases. The decision aid was rated as useful. Hydroxyurea knowledge improved and decisional conflict decreased supporting the potential for use to facilitate shared decision making in pediatric sickle cell anemia.

Original languageEnglish (US)
Pages (from-to)56-63
Number of pages8
JournalJournal of Pediatric Hematology/Oncology
Volume41
Issue number1
DOIs
StatePublished - Jan 1 2019

Keywords

  • decision aids
  • decision making
  • hydroxyurea
  • pediatric
  • treatment preference

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Hematology
  • Oncology

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    Crosby, L. E., Walton, A., Shook, L. M., Ware, R. E., Treadwell, M., Saving, K. L., Britto, M., Peugh, J., McTate, E., Oyeku, S., Nwankwo, C., & Brinkman, W. B. (2019). Development of a Hydroxyurea Decision Aid for Parents of Children with Sickle Cell Anemia. Journal of Pediatric Hematology/Oncology, 41(1), 56-63. https://doi.org/10.1097/MPH.0000000000001257