Community Representatives' Involvement in Clinical and Translational Science Awardee Activities

Consuelo H. Wilkins, Mark Spofford, Neely Williams, Corliss Mckeever, Shauntice Allen, Jen Brown, Jennifer Opp, Alan Richmond, A. Hal Strelnick

Research output: Contribution to journalArticle

26 Scopus citations

Abstract

Objectives: To understand the formal roles of community representatives (CRs) in Clinical and Translational Science Awardee (CTSA) activities, to evaluate the extent of integration into the organizational and governance structures and to identify barriers to effective integration. Methods: The inventory tool was distributed to each of the 60 CTSAs using a secure web application. Results: Forty-seven (78%) completed the inventory. The mean number of CRs per CTSA is 21.4 (SD: 14.8). Most CTSAs had community advisory boards (89%) and 94% included CRs in Community Engagement (CE) cores. Only 11% reported a CR being a member of the CTSA leadership team and 19% reported that CRs advise core programs beyond CE. CRs are compensated by 79% of CTSAs. Mean annual compensation is $753 (median: $400). Compensation directly correlated with the number of hours that CRs worked in CTSA activities (r = 0.64; P = 0.001). Conclusions: This inventory allows CTSAs to better understand how CRs have engaged in activities and brings attention to the limited representation among cores and in leadership roles. CTSAs should, with substantive input from CRs, develop strategies to provide the resources and compensation necessary to better integrate the community in CTSA activities and fully realize the goals of the CTSA vision.

Original languageEnglish (US)
Pages (from-to)292-296
Number of pages5
JournalClinical and Translational Science
Volume6
Issue number4
DOIs
StatePublished - Aug 2013

Keywords

  • CTSA
  • Community engagement
  • Community-engaged research
  • Translational research

ASJC Scopus subject areas

  • Neuroscience(all)
  • Biochemistry, Genetics and Molecular Biology(all)
  • Pharmacology, Toxicology and Pharmaceutics(all)

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  • Cite this

    Wilkins, C. H., Spofford, M., Williams, N., Mckeever, C., Allen, S., Brown, J., Opp, J., Richmond, A., & Strelnick, A. H. (2013). Community Representatives' Involvement in Clinical and Translational Science Awardee Activities. Clinical and Translational Science, 6(4), 292-296. https://doi.org/10.1111/cts.12072