The value of the patient perspective in understanding the full burden of migraine

Rebecca Erwin Wells; Paige M. Estave; Rebecca Burch; Niina Haas; Scott W. Powers; Elizabeth Seng; Dawn C. Buse; Richard B. Lipton

doi:10.1111/head.14167

The value of the patient perspective in understanding the full burden of migraine

Rebecca Erwin Wells, Paige M. Estave, Rebecca Burch, Niina Haas, Scott W. Powers, Elizabeth Seng, Dawn C. Buse, Richard B. Lipton

Neurology

Research output: Contribution to journal › Editorial › peer-review

Original language	English (US)
Pages (from-to)	985-987
Number of pages	3
Journal	Headache
Volume	61
Issue number	7
DOIs	https://doi.org/10.1111/head.14167
State	Published - Jul 1 2021

Keywords

guilt
headache
patient-centered
qualitative
stigma

ASJC Scopus subject areas

Neurology
Clinical Neurology

Access to Document

10.1111/head.14167

Cite this

@article{44300d4909b14329ae00d1817638450d,

title = "The value of the patient perspective in understanding the full burden of migraine",

keywords = "guilt, headache, patient-centered, qualitative, stigma",

author = "Wells, {Rebecca Erwin} and Estave, {Paige M.} and Rebecca Burch and Niina Haas and Powers, {Scott W.} and Elizabeth Seng and Buse, {Dawn C.} and Lipton, {Richard B.}",

note = "Funding Information: We are grateful to all the participants who volunteered for this study. This research was conducted with tremendous support from Summerlyn Beeghly, Reid Anderson, Caitlyn Margol, Mariam Shakir, Geena George, Anissa Berger, Nathaniel O'Connell, Charles R. Pierce, Kate Furgurson, the Wake Forest Baptist Health Q‐Pro, Timothy T. Houle, PhD, Elizabeth Loder, MD, MPH, Donald B. Penzien, PhD, and Fadel Zeidan, PhD. We appreciate support from the Wake Forest Clinical Translational Science Institute (CTSI), the Clinical Research Unit staff and support, and the Research Coordinator Pool, funded by the National Center for Advancing Translational Sciences (NCATS), National Institutes of Health, through Grant Award Number UL1TR001420, and Harvard Catalyst research assistant Peter Douglass. We appreciate the help of the research coordinators, including Imani Randolph, Elizabeth Crenshaw, Emily Ansusinha, Georgeta Lester, Carolyn Hedrick, Sandra Norona, Nancy Lawlor, and Brittany Briceno. This study would not have been completed without the tremendous support of a multitude of students, including the following: Nicole Rojas, Hudaisa Fatima, Jason Collier, Grace Posey, Obiageli Nwamu, Vinish Kumar, Rosalia Arnolda, Paige Brabant, Danika Berman, Nicholas Contillo, Flora Chang, Easton Howard, Camden Nelson, and Carson DeLong. Funding Information: PME and REW have no conflicts of interest to report. RB receives an editorial stipend for serving as an Associate Editor for . NH is an employee and receives salary support from BrightOutcome Inc. ES has consulted for GlaxoSmithKline and Click Therapeutics. SWP receives grant support to his institution from the National Institutes of Health, Migraine Research Foundation, National Headache Foundation, and Cystic Fibrosis Foundation. He is a member of the Migraine Research Foundation Advisory Board and is an Associate Editor for . He has served as a consultant for Theranica, Biohaven, and Allegan MIND. DCB is a part‐time employee of Vector Psychometric Group, LLC, and has received grant support and honoraria from the Food and Drug Administration and the National Headache Foundation and grant support and honoraria from Allergan, Amgen, Biohaven, Lilly, Lundbeck, and Teva. She serves on the editorial board of Current Pain and Headache Reports. RBL has received grant support from the National Institutes of Health, the Food and Drug Administration, the National Headache Foundation, and the Migraine Research Fund. He serves as a consultant, serves as an advisory board member, and has received honoraria from or conducted studies funded by Alder, Abbvie/Allergan, American Headache Society, Biohaven, Eli Lilly, Lundbeck, Merck, Novartis, Pfizer, and Teva, Inc. He receives royalties from , 8th Edition (Oxford University Press, 2009). He holds stock or options in Biohaven and Ctrl M. Neurology Headache Wolff's Headache Funding Information: The authors gratefully acknowledge financial support from the American Pain Society Grant, Sharon S. Keller Chronic Pain Research Program (PI-Wells), NCCIH K23AT008406 (PI-Wells) and NINDS K23NS096107 (PI-Seng), American Headache Society Fellowship (PIs: Wells and Burch), and the Headache Research Fund of the John R. Graham Headache Center, Brigham and Women's Faulkner Hospital. This research was supported in part by the Qualitative and Patient-Reported Outcomes Developing Shared Resource of the Wake Forest Baptist Comprehensive Cancer Center's NCI Cancer Center Support Grant P30CA012197 and the Wake Forest Clinical and Translational Science Institute's NCATS Grant UL1TR001420. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. We are grateful to all the participants who volunteered for this study. This research was conducted with tremendous support from Summerlyn Beeghly, Reid Anderson, Caitlyn Margol, Mariam Shakir, Geena George, Anissa Berger, Nathaniel O'Connell, Charles R. Pierce, Kate Furgurson, the Wake Forest Baptist Health Q-Pro, Timothy T. Houle, PhD, Elizabeth Loder, MD, MPH, Donald B. Penzien, PhD, and Fadel Zeidan, PhD. We appreciate support from the Wake Forest Clinical Translational Science Institute (CTSI), the Clinical Research Unit staff and support, and the Research Coordinator Pool, funded by the National Center for Advancing Translational Sciences (NCATS), National Institutes of Health, through Grant Award Number UL1TR001420, and Harvard Catalyst research assistant Peter Douglass. We appreciate the help of the research coordinators, including Imani Randolph, Elizabeth Crenshaw, Emily Ansusinha, Georgeta Lester, Carolyn Hedrick, Sandra Norona, Nancy Lawlor, and Brittany Briceno. This study would not have been completed without the tremendous support of a multitude of students, including the following: Nicole Rojas, Hudaisa Fatima, Jason Collier, Grace Posey, Obiageli Nwamu, Vinish Kumar, Rosalia Arnolda, Paige Brabant, Danika Berman, Nicholas Contillo, Flora Chang, Easton Howard, Camden Nelson, and Carson DeLong. Funding Information: The authors gratefully acknowledge financial support from the American Pain Society Grant, Sharon S. Keller Chronic Pain Research Program (PI‐Wells), NCCIH K23AT008406 (PI‐Wells) and NINDS K23NS096107 (PI‐Seng), American Headache Society Fellowship (PIs: Wells and Burch), and the Headache Research Fund of the John R. Graham Headache Center, Brigham and Women's Faulkner Hospital. This research was supported in part by the Qualitative and Patient‐Reported Outcomes Developing Shared Resource of the Wake Forest Baptist Comprehensive Cancer Center's NCI Cancer Center Support Grant P30CA012197 and the Wake Forest Clinical and Translational Science Institute's NCATS Grant UL1TR001420. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. ",

year = "2021",

month = jul,

day = "1",

doi = "10.1111/head.14167",

language = "English (US)",

volume = "61",

pages = "985--987",

journal = "Headache",

issn = "0017-8748",

publisher = "Wiley-Blackwell",

number = "7",

}

TY - JOUR

T1 - The value of the patient perspective in understanding the full burden of migraine

AU - Wells, Rebecca Erwin

AU - Estave, Paige M.

AU - Burch, Rebecca

AU - Haas, Niina

AU - Powers, Scott W.

AU - Seng, Elizabeth

AU - Buse, Dawn C.

AU - Lipton, Richard B.

N1 - Funding Information: We are grateful to all the participants who volunteered for this study. This research was conducted with tremendous support from Summerlyn Beeghly, Reid Anderson, Caitlyn Margol, Mariam Shakir, Geena George, Anissa Berger, Nathaniel O'Connell, Charles R. Pierce, Kate Furgurson, the Wake Forest Baptist Health Q‐Pro, Timothy T. Houle, PhD, Elizabeth Loder, MD, MPH, Donald B. Penzien, PhD, and Fadel Zeidan, PhD. We appreciate support from the Wake Forest Clinical Translational Science Institute (CTSI), the Clinical Research Unit staff and support, and the Research Coordinator Pool, funded by the National Center for Advancing Translational Sciences (NCATS), National Institutes of Health, through Grant Award Number UL1TR001420, and Harvard Catalyst research assistant Peter Douglass. We appreciate the help of the research coordinators, including Imani Randolph, Elizabeth Crenshaw, Emily Ansusinha, Georgeta Lester, Carolyn Hedrick, Sandra Norona, Nancy Lawlor, and Brittany Briceno. This study would not have been completed without the tremendous support of a multitude of students, including the following: Nicole Rojas, Hudaisa Fatima, Jason Collier, Grace Posey, Obiageli Nwamu, Vinish Kumar, Rosalia Arnolda, Paige Brabant, Danika Berman, Nicholas Contillo, Flora Chang, Easton Howard, Camden Nelson, and Carson DeLong. Funding Information: PME and REW have no conflicts of interest to report. RB receives an editorial stipend for serving as an Associate Editor for . NH is an employee and receives salary support from BrightOutcome Inc. ES has consulted for GlaxoSmithKline and Click Therapeutics. SWP receives grant support to his institution from the National Institutes of Health, Migraine Research Foundation, National Headache Foundation, and Cystic Fibrosis Foundation. He is a member of the Migraine Research Foundation Advisory Board and is an Associate Editor for . He has served as a consultant for Theranica, Biohaven, and Allegan MIND. DCB is a part‐time employee of Vector Psychometric Group, LLC, and has received grant support and honoraria from the Food and Drug Administration and the National Headache Foundation and grant support and honoraria from Allergan, Amgen, Biohaven, Lilly, Lundbeck, and Teva. She serves on the editorial board of Current Pain and Headache Reports. RBL has received grant support from the National Institutes of Health, the Food and Drug Administration, the National Headache Foundation, and the Migraine Research Fund. He serves as a consultant, serves as an advisory board member, and has received honoraria from or conducted studies funded by Alder, Abbvie/Allergan, American Headache Society, Biohaven, Eli Lilly, Lundbeck, Merck, Novartis, Pfizer, and Teva, Inc. He receives royalties from , 8th Edition (Oxford University Press, 2009). He holds stock or options in Biohaven and Ctrl M. Neurology Headache Wolff's Headache Funding Information: The authors gratefully acknowledge financial support from the American Pain Society Grant, Sharon S. Keller Chronic Pain Research Program (PI-Wells), NCCIH K23AT008406 (PI-Wells) and NINDS K23NS096107 (PI-Seng), American Headache Society Fellowship (PIs: Wells and Burch), and the Headache Research Fund of the John R. Graham Headache Center, Brigham and Women's Faulkner Hospital. This research was supported in part by the Qualitative and Patient-Reported Outcomes Developing Shared Resource of the Wake Forest Baptist Comprehensive Cancer Center's NCI Cancer Center Support Grant P30CA012197 and the Wake Forest Clinical and Translational Science Institute's NCATS Grant UL1TR001420. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. We are grateful to all the participants who volunteered for this study. This research was conducted with tremendous support from Summerlyn Beeghly, Reid Anderson, Caitlyn Margol, Mariam Shakir, Geena George, Anissa Berger, Nathaniel O'Connell, Charles R. Pierce, Kate Furgurson, the Wake Forest Baptist Health Q-Pro, Timothy T. Houle, PhD, Elizabeth Loder, MD, MPH, Donald B. Penzien, PhD, and Fadel Zeidan, PhD. We appreciate support from the Wake Forest Clinical Translational Science Institute (CTSI), the Clinical Research Unit staff and support, and the Research Coordinator Pool, funded by the National Center for Advancing Translational Sciences (NCATS), National Institutes of Health, through Grant Award Number UL1TR001420, and Harvard Catalyst research assistant Peter Douglass. We appreciate the help of the research coordinators, including Imani Randolph, Elizabeth Crenshaw, Emily Ansusinha, Georgeta Lester, Carolyn Hedrick, Sandra Norona, Nancy Lawlor, and Brittany Briceno. This study would not have been completed without the tremendous support of a multitude of students, including the following: Nicole Rojas, Hudaisa Fatima, Jason Collier, Grace Posey, Obiageli Nwamu, Vinish Kumar, Rosalia Arnolda, Paige Brabant, Danika Berman, Nicholas Contillo, Flora Chang, Easton Howard, Camden Nelson, and Carson DeLong. Funding Information: The authors gratefully acknowledge financial support from the American Pain Society Grant, Sharon S. Keller Chronic Pain Research Program (PI‐Wells), NCCIH K23AT008406 (PI‐Wells) and NINDS K23NS096107 (PI‐Seng), American Headache Society Fellowship (PIs: Wells and Burch), and the Headache Research Fund of the John R. Graham Headache Center, Brigham and Women's Faulkner Hospital. This research was supported in part by the Qualitative and Patient‐Reported Outcomes Developing Shared Resource of the Wake Forest Baptist Comprehensive Cancer Center's NCI Cancer Center Support Grant P30CA012197 and the Wake Forest Clinical and Translational Science Institute's NCATS Grant UL1TR001420. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.

PY - 2021/7/1

Y1 - 2021/7/1

KW - guilt

KW - headache

KW - patient-centered

KW - qualitative

KW - stigma

UR - http://www.scopus.com/inward/record.url?scp=85112483181&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85112483181&partnerID=8YFLogxK

U2 - 10.1111/head.14167

DO - 10.1111/head.14167

M3 - Editorial

C2 - 34363403

AN - SCOPUS:85112483181

SN - 0017-8748

VL - 61

SP - 985

EP - 987

JO - Headache

JF - Headache

IS - 7

ER -

The value of the patient perspective in understanding the full burden of migraine

Keywords

ASJC Scopus subject areas

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