Strategies for conducting adolescent health research in the clinical setting

The mount sinai adolescent health center hpv experience

Debra K. Braun-Courville, Nicolas F. Schlecht, Robert D. Burk, Howard Strickler, Mary Rojas, Elizabeth Lorde-Rollins, Anne Nucci-Sack, Dominic Hollman, L. Oriana Linares, Angela Diaz

Research output: Contribution to journalArticle

7 Citations (Scopus)

Abstract

Background: Clinical research with adolescents can be challenging due to issues of informed consent, parental involvement, institutional review board requirements, and adolescent psychosocial development. These requirements present a dilemma, particularly in the area of sexual health research, as adolescents are disproportionately affected by sexually transmitted infections such as human papillomavirus (HPV). To successfully conduct adolescent research in the clinical setting, one requires an awareness of state statutes regarding adolescent confidentiality and consent for medical care, and a close partnership with the IRB. Case Study: In 2007, the Mount Sinai Adolescent Health Center in collaboration with the Albert Einstein College of Medicine developed a longitudinal research study to examine the natural history of oral, cervical, and anal HPV in an adolescent female population engaged in high-risk sexual behaviors. We use this research project as a case study to explore the ethical, methodological, and clinical issues related to conducting adolescent health research. Summary and Conclusions: Several strategies were identified to promote adolescent study participation, including: (1) building a research team that is motivated to work with adolescents; (2) combining research and patient care visits to avoid duplication of services; and (3) establishing a personalized communication network with participants. Using these methods, adolescent sexual health research can successfully be integrated into the clinical setting. While retaining a prospective cohort of adolescents has its challenges, a persistent and multi-disciplinary approach can help improve recruitment, sustain participation, and acquire critical data that will lead to improved healthcare knowledge applicable to understudied populations of adolescents.

Original languageEnglish (US)
Pages (from-to)e103-e108
JournalJournal of Pediatric and Adolescent Gynecology
Volume27
Issue number5
DOIs
StatePublished - Oct 1 2014

Fingerprint

Research
Research Ethics Committees
Reproductive Health
Adolescent Development
Adolescent Health
Confidentiality
Sexually Transmitted Diseases
Risk-Taking
Natural History
Informed Consent
Sexual Behavior
Population
Longitudinal Studies
Patient Care
Communication
Medicine
Delivery of Health Care

Keywords

  • Adolescent Research
  • Human Papillomavirus
  • Institutional Review Boards
  • Parental Consent
  • Sexual and Reproductive Health

ASJC Scopus subject areas

  • Obstetrics and Gynecology
  • Pediatrics, Perinatology, and Child Health
  • Medicine(all)

Cite this

Strategies for conducting adolescent health research in the clinical setting : The mount sinai adolescent health center hpv experience. / Braun-Courville, Debra K.; Schlecht, Nicolas F.; Burk, Robert D.; Strickler, Howard; Rojas, Mary; Lorde-Rollins, Elizabeth; Nucci-Sack, Anne; Hollman, Dominic; Linares, L. Oriana; Diaz, Angela.

In: Journal of Pediatric and Adolescent Gynecology, Vol. 27, No. 5, 01.10.2014, p. e103-e108.

Research output: Contribution to journalArticle

Braun-Courville, Debra K. ; Schlecht, Nicolas F. ; Burk, Robert D. ; Strickler, Howard ; Rojas, Mary ; Lorde-Rollins, Elizabeth ; Nucci-Sack, Anne ; Hollman, Dominic ; Linares, L. Oriana ; Diaz, Angela. / Strategies for conducting adolescent health research in the clinical setting : The mount sinai adolescent health center hpv experience. In: Journal of Pediatric and Adolescent Gynecology. 2014 ; Vol. 27, No. 5. pp. e103-e108.
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