TY - JOUR
T1 - Recruiting vulnerable populations to participate in HIV prevention research
T2 - findings from the Together 5000 cohort study
AU - Grov, Christian
AU - Westmoreland, Drew A.
AU - Carneiro, Pedro B.
AU - Stief, Matthew
AU - MacCrate, Caitlin
AU - Mirzayi, Chloe
AU - Pantalone, David W.
AU - Patel, Viraj V.
AU - Nash, Denis
N1 - Publisher Copyright:
© 2019 Elsevier Inc.
PY - 2019/7
Y1 - 2019/7
N2 - Purpose: The aim of the article was to examine factors associated with completing enrollment milestones in the Together 5000 cohort of at-risk men (n = 8661), transmen (n = 53), and transwomen (n = 63) who have sex with men. Methods: Between 2017 and 2018, participants completed an online enrollment survey and were offered opportunities to complete an incentivized secondary online survey as well as self-administered at-home HIV testing (OraSure). We explored factors associated with completing each study component. Results: In total, 8777 individuals completed our enrollment survey, 6166 (70.3%) completed the secondary survey, and 5010 returned the at-home HIV test kit that was mailed to them (81.3% of those mailed a kit). In our multivariable models, those who were White, with more years of education, were more likely to complete study components, although the magnitude of these associations was small. For example, 50.9% of those enrolled, 47.9% of those completing the secondary survey, and 46.8% of those completing HIV testing were persons of color—a statistically significant, but meaningfully insignificant decline. Conclusions: These findings highlight the need for researchers to identify barriers that may prevent persons of color and younger individuals from participating in research studies.
AB - Purpose: The aim of the article was to examine factors associated with completing enrollment milestones in the Together 5000 cohort of at-risk men (n = 8661), transmen (n = 53), and transwomen (n = 63) who have sex with men. Methods: Between 2017 and 2018, participants completed an online enrollment survey and were offered opportunities to complete an incentivized secondary online survey as well as self-administered at-home HIV testing (OraSure). We explored factors associated with completing each study component. Results: In total, 8777 individuals completed our enrollment survey, 6166 (70.3%) completed the secondary survey, and 5010 returned the at-home HIV test kit that was mailed to them (81.3% of those mailed a kit). In our multivariable models, those who were White, with more years of education, were more likely to complete study components, although the magnitude of these associations was small. For example, 50.9% of those enrolled, 47.9% of those completing the secondary survey, and 46.8% of those completing HIV testing were persons of color—a statistically significant, but meaningfully insignificant decline. Conclusions: These findings highlight the need for researchers to identify barriers that may prevent persons of color and younger individuals from participating in research studies.
KW - Attrition
KW - Gay and bisexual men
KW - HIV testing
KW - Men who have sex with men
KW - Recruitment
UR - http://www.scopus.com/inward/record.url?scp=85066792113&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85066792113&partnerID=8YFLogxK
U2 - 10.1016/j.annepidem.2019.05.003
DO - 10.1016/j.annepidem.2019.05.003
M3 - Article
C2 - 31182379
AN - SCOPUS:85066792113
SN - 1047-2797
VL - 35
SP - 4
EP - 11
JO - Annals of Epidemiology
JF - Annals of Epidemiology
ER -