TY - JOUR
T1 - Recruiting vulnerable populations to participate in HIV prevention research
T2 - findings from the Together 5000 cohort study
AU - Grov, Christian
AU - Westmoreland, Drew A.
AU - Carneiro, Pedro B.
AU - Stief, Matthew
AU - MacCrate, Caitlin
AU - Mirzayi, Chloe
AU - Pantalone, David W.
AU - Patel, Viraj V.
AU - Nash, Denis
N1 - Funding Information:
Together 5000 was funded by the National Institutes for Health ( UG3 AI 133675 —Principal Investigator: C.G.). V.V.P. was supported by a career development award ( K23MH102118 ). Other forms of support include the CUNY Institute for Implementation Science in Population Health, and the Einstein, Rockefeller, CUNY Center for AIDS Research ( ERC CFAR, P30 AI124414 ).
Funding Information:
The authors thank additional members of the T5K study team: Sarit A. Golub, Gregorio Millett, Don Hoover, Sarah Kulkarni, Alexa D'Angelo, Gloria Perez, Irvin Parker, and Javier Lopez-Rios. They also thank the program staff at National Institutes of Health: Gerald Sharp, Sonia Lee, and Michael Stirratt; and the members of our Scientific Advisory Board: Michael Camacho, Adam Carrico, Demetre Daskalakis, Sabina Hirshfeld, Jeremiah Johnson, Claude Mellins, and Milo Santos. Together 5000 was funded by the National Institutes for Health (UG3 AI 133675?Principal Investigator: C.G.). V.V.P. was supported by a career development award (K23MH102118). Other forms of support include the CUNY Institute for Implementation Science in Population Health, and the Einstein, Rockefeller, CUNY Center for AIDS Research (ERC CFAR, P30 AI124414).
Publisher Copyright:
© 2019 Elsevier Inc.
PY - 2019/7
Y1 - 2019/7
N2 - Purpose: The aim of the article was to examine factors associated with completing enrollment milestones in the Together 5000 cohort of at-risk men (n = 8661), transmen (n = 53), and transwomen (n = 63) who have sex with men. Methods: Between 2017 and 2018, participants completed an online enrollment survey and were offered opportunities to complete an incentivized secondary online survey as well as self-administered at-home HIV testing (OraSure). We explored factors associated with completing each study component. Results: In total, 8777 individuals completed our enrollment survey, 6166 (70.3%) completed the secondary survey, and 5010 returned the at-home HIV test kit that was mailed to them (81.3% of those mailed a kit). In our multivariable models, those who were White, with more years of education, were more likely to complete study components, although the magnitude of these associations was small. For example, 50.9% of those enrolled, 47.9% of those completing the secondary survey, and 46.8% of those completing HIV testing were persons of color—a statistically significant, but meaningfully insignificant decline. Conclusions: These findings highlight the need for researchers to identify barriers that may prevent persons of color and younger individuals from participating in research studies.
AB - Purpose: The aim of the article was to examine factors associated with completing enrollment milestones in the Together 5000 cohort of at-risk men (n = 8661), transmen (n = 53), and transwomen (n = 63) who have sex with men. Methods: Between 2017 and 2018, participants completed an online enrollment survey and were offered opportunities to complete an incentivized secondary online survey as well as self-administered at-home HIV testing (OraSure). We explored factors associated with completing each study component. Results: In total, 8777 individuals completed our enrollment survey, 6166 (70.3%) completed the secondary survey, and 5010 returned the at-home HIV test kit that was mailed to them (81.3% of those mailed a kit). In our multivariable models, those who were White, with more years of education, were more likely to complete study components, although the magnitude of these associations was small. For example, 50.9% of those enrolled, 47.9% of those completing the secondary survey, and 46.8% of those completing HIV testing were persons of color—a statistically significant, but meaningfully insignificant decline. Conclusions: These findings highlight the need for researchers to identify barriers that may prevent persons of color and younger individuals from participating in research studies.
KW - Attrition
KW - Gay and bisexual men
KW - HIV testing
KW - Men who have sex with men
KW - Recruitment
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U2 - 10.1016/j.annepidem.2019.05.003
DO - 10.1016/j.annepidem.2019.05.003
M3 - Article
C2 - 31182379
AN - SCOPUS:85066792113
SN - 1047-2797
VL - 35
SP - 4
EP - 11
JO - Annals of Epidemiology
JF - Annals of Epidemiology
ER -
