Recruiting vulnerable populations to participate in HIV prevention research

findings from the Together 5000 cohort study

Christian Grov, Drew A. Westmoreland, Pedro B. Carneiro, Matthew Stief, Caitlin MacCrate, Chloe Mirzayi, David W. Pantalone, Viraj V. Patel, Denis Nash

Research output: Contribution to journalArticle

Abstract

Purpose: The aim of the article was to examine factors associated with completing enrollment milestones in the Together 5000 cohort of at-risk men (n = 8661), transmen (n = 53), and transwomen (n = 63) who have sex with men. Methods: Between 2017 and 2018, participants completed an online enrollment survey and were offered opportunities to complete an incentivized secondary online survey as well as self-administered at-home HIV testing (OraSure). We explored factors associated with completing each study component. Results: In total, 8777 individuals completed our enrollment survey, 6166 (70.3%) completed the secondary survey, and 5010 returned the at-home HIV test kit that was mailed to them (81.3% of those mailed a kit). In our multivariable models, those who were White, with more years of education, were more likely to complete study components, although the magnitude of these associations was small. For example, 50.9% of those enrolled, 47.9% of those completing the secondary survey, and 46.8% of those completing HIV testing were persons of color—a statistically significant, but meaningfully insignificant decline. Conclusions: These findings highlight the need for researchers to identify barriers that may prevent persons of color and younger individuals from participating in research studies.

Original languageEnglish (US)
JournalAnnals of Epidemiology
DOIs
StatePublished - Jan 1 2019

Fingerprint

Vulnerable Populations
Cohort Studies
HIV
Research
Color
Research Personnel
Surveys and Questionnaires
Education

Keywords

  • Attrition
  • Gay and bisexual men
  • HIV testing
  • Men who have sex with men
  • Recruitment

ASJC Scopus subject areas

  • Epidemiology

Cite this

Recruiting vulnerable populations to participate in HIV prevention research : findings from the Together 5000 cohort study. / Grov, Christian; Westmoreland, Drew A.; Carneiro, Pedro B.; Stief, Matthew; MacCrate, Caitlin; Mirzayi, Chloe; Pantalone, David W.; Patel, Viraj V.; Nash, Denis.

In: Annals of Epidemiology, 01.01.2019.

Research output: Contribution to journalArticle

Grov, Christian ; Westmoreland, Drew A. ; Carneiro, Pedro B. ; Stief, Matthew ; MacCrate, Caitlin ; Mirzayi, Chloe ; Pantalone, David W. ; Patel, Viraj V. ; Nash, Denis. / Recruiting vulnerable populations to participate in HIV prevention research : findings from the Together 5000 cohort study. In: Annals of Epidemiology. 2019.
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