Pediatric Palliative Care

Karen Moody, Linda Siegel, Kathryn Scharbach, Leslie Cunningham, Rabbi Mollie Cantor

Research output: Contribution to journalReview article

19 Scopus citations

Abstract

Progress in pediatric palliative care has gained momentum, but there remain significant barriers to the appropriate provision of palliative care to ill and dying children, including the lack of properly trained health care professionals, resources to finance such care, and scientific research, as well as a continued cultural denial of death in children. This article reviews the epidemiology of pediatric palliative care, special communication concerns, decision making, ethical and legal considerations, symptom assessment and management, psychosocial issues, provision of care across settings, end-of-life care, and bereavement. Educational and supportive resources for health care practitioners and families, respectively, are included.

Original languageEnglish (US)
Pages (from-to)327-361
Number of pages35
JournalPrimary Care - Clinics in Office Practice
Volume38
Issue number2
DOIs
StatePublished - Jun 1 2011

Keywords

  • Advanced care planning
  • End-of-life care
  • Palliative care
  • Pediatric palliative care

ASJC Scopus subject areas

  • Pharmacology (medical)

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    Moody, K., Siegel, L., Scharbach, K., Cunningham, L., & Cantor, R. M. (2011). Pediatric Palliative Care. Primary Care - Clinics in Office Practice, 38(2), 327-361. https://doi.org/10.1016/j.pop.2011.03.011