Parents’ Assessment of an Advanced-Practice Nurse and Care Coordination Assistant Model Medical Care Coordination Program for Children With Medical Complexity

Introduction: Care for many children with medical complexity (CMC) is fragmented, leading to increased family dissatisfaction and stress. We evaluated the impact of an Advanced-Practice Nurse and Care Coordination Assistant model medical care coordination program (MCCP) for CMC at an urban tertiary pediatric hospital on caregivers’ perceptions of several health care indicators. Method: A retrospective pre-post survey was administered to parents of CMC enrolled in an MCCP for a minimum of 6 months. Questions were grouped into four domains: quality of life, caregiver satisfaction, care coordination, and caregiver self-efficacy. Mean scores of questions in each domain were compared from before program enrollment with those at the time of survey completion, using paired sample t tests. Result: There was an increase in the mean score in all four domains. Discussion: Parents of CMC experience an Advanced-Practice Nurse and Care Coordination Assistant model MCCP to be effective in improving the navigation of and satisfaction with their child's health care environment.