Mental health assessment of youth with sickle cell disease and their primary caregivers during the COVID-19 pandemic

Nancy S. Green; Deepa Manwani; Kim Smith-Whitley; Banu Aygun; Abena Appiah-Kubi; Arlene M. Smaldone

doi:10.1002/pbc.29797

Mental health assessment of youth with sickle cell disease and their primary caregivers during the COVID-19 pandemic

Nancy S. Green, Deepa Manwani, Kim Smith-Whitley, Banu Aygun, Abena Appiah-Kubi, Arlene M. Smaldone

Pediatrics

Research output: Contribution to journal › Article › peer-review

1 Scopus citations

Abstract

Youth with sickle cell disease (SCD) and their caregivers are susceptible to stress and depression, perhaps exacerbated by pandemic-associated health and economic concerns. Most of the 50 youth–caregiver dyads enrolled in the multisite trial, Hydroxyurea Adherence for Personal Best in Sickle Cell Treatment (HABIT), took an online survey of self-reported mental health symptoms and food insecurity during the 2020 COVID-19 pandemic. Compared to largely pre-pandemic results, prevalence of mental health symptoms in dyad members appeared to have shifted: fewer youth and more caregivers were affected during the pandemic; many of both groups lacked optimism. Pandemic/post-pandemic screening of youth with SCD for mental health symptoms and food insecurity appears warranted.

Original language	English (US)
Article number	e29797
Journal	Pediatric Blood and Cancer
Volume	69
Issue number	9
DOIs	https://doi.org/10.1002/pbc.29797
State	Published - Sep 2022

Keywords

anxiety
depression
mental health
pandemic
sickle cell disease
youth

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health
Hematology
Oncology

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1002/pbc.29797

Cite this

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abstract = "Youth with sickle cell disease (SCD) and their caregivers are susceptible to stress and depression, perhaps exacerbated by pandemic-associated health and economic concerns. Most of the 50 youth–caregiver dyads enrolled in the multisite trial, Hydroxyurea Adherence for Personal Best in Sickle Cell Treatment (HABIT), took an online survey of self-reported mental health symptoms and food insecurity during the 2020 COVID-19 pandemic. Compared to largely pre-pandemic results, prevalence of mental health symptoms in dyad members appeared to have shifted: fewer youth and more caregivers were affected during the pandemic; many of both groups lacked optimism. Pandemic/post-pandemic screening of youth with SCD for mental health symptoms and food insecurity appears warranted.",

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AU - Smaldone, Arlene M.

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Mental health assessment of youth with sickle cell disease and their primary caregivers during the COVID-19 pandemic

Abstract

Keywords

ASJC Scopus subject areas

UN SDGs

Access to Document

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