TY - JOUR
T1 - Measuring the involvement in family life of children with autism spectrum disorder
T2 - A DBPNet study
AU - Schwartz, Justin
AU - Huntington, Noelle
AU - Toomey, Marisa
AU - Laverdiere, Michele
AU - Bevans, Katherine
AU - Blum, Nathan
AU - Bridgemohan, Carolyn
N1 - Funding Information:
This study was supported by cooperative agreement UA3MC20218 and by projects T77MC00012 and T77MC00011 from the Maternal and Child Health Bureau, Health Resources and Services Administration, U.S. Department of Health and Human Services . This information or content and conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.
Publisher Copyright:
© 2018 Elsevier Ltd
PY - 2018/12
Y1 - 2018/12
N2 - Background: Children with Autism Spectrum Disorder (ASD) have social and communication deficits that impair their involvement in family life. No measures of child involvement in the family have been validated for the ASD population. Aim: To evaluate the validity of a measure of Family Involvement (FI) of children ages 5–12 with ASD. Method: Parents of children ages 5–12 with ASD (n = 114) completed FI items from the PROMIS® pediatric Family Relationships item bank in computerized adaptive testing (CAT) format, as well as measures of ASD symptom burden, parenting stress, and parental depression. Medical record review provided child intelligence or developmental quotient. A reference sample (n = 236) closely matching the ASD sample in age and gender was created from the national standardization sample, and underwent a simulated CAT. Results: The CAT precisely and efficiently measured parent-reported FI of children with ASD. Average FI scores were lower among children with ASD (M = 46.3, SD = 7.1) than children in the reference sample (M = 52.5, SD = 9.1). A “dose response” decrease in FI was observed as ASD severity increased. Increased parenting stress was associated with lower FI. No relationship between FI and child IQ was found. Conclusion: The FI items captured FI among children ages 5–12 with ASD with acceptable precision. Reduced FI among children with ASD, particularly those with higher symptom severity, suggests validity of the items in this population.
AB - Background: Children with Autism Spectrum Disorder (ASD) have social and communication deficits that impair their involvement in family life. No measures of child involvement in the family have been validated for the ASD population. Aim: To evaluate the validity of a measure of Family Involvement (FI) of children ages 5–12 with ASD. Method: Parents of children ages 5–12 with ASD (n = 114) completed FI items from the PROMIS® pediatric Family Relationships item bank in computerized adaptive testing (CAT) format, as well as measures of ASD symptom burden, parenting stress, and parental depression. Medical record review provided child intelligence or developmental quotient. A reference sample (n = 236) closely matching the ASD sample in age and gender was created from the national standardization sample, and underwent a simulated CAT. Results: The CAT precisely and efficiently measured parent-reported FI of children with ASD. Average FI scores were lower among children with ASD (M = 46.3, SD = 7.1) than children in the reference sample (M = 52.5, SD = 9.1). A “dose response” decrease in FI was observed as ASD severity increased. Increased parenting stress was associated with lower FI. No relationship between FI and child IQ was found. Conclusion: The FI items captured FI among children ages 5–12 with ASD with acceptable precision. Reduced FI among children with ASD, particularly those with higher symptom severity, suggests validity of the items in this population.
KW - ASD
KW - Autism spectrum disorder
KW - Family involvement
KW - Patient reported outcomes measure
KW - Quality of life
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U2 - 10.1016/j.ridd.2018.07.012
DO - 10.1016/j.ridd.2018.07.012
M3 - Article
C2 - 30092382
AN - SCOPUS:85050974796
SN - 0891-4222
VL - 83
SP - 18
EP - 27
JO - Analysis and Intervention In Developmental Disablities
JF - Analysis and Intervention In Developmental Disablities
ER -