How Variable Is Our Delivery of Information? Approaches to Patient Education About Oral Chemotherapy in the Pediatric Oncology Clinic

Justine M. Kahn, Uma H. Athale, Luis A. Clavell, Peter D. Cole, Jean Marie Leclerc, Caroline Laverdiere, Bruno Michon, Marshall A. Schorin, Jennifer J G Welch, Stephen E. Sallan, Lewis B. Silverman, Kara M. Kelly

Research output: Contribution to journalArticle

4 Scopus citations

Abstract

In pediatric patients with acute lymphoblastic leukemia, adherence to oral chemotherapy relies largely on a parent's comprehension of the drug's indication and administration guidelines. We assessed how pediatric oncology providers educate families about oral chemotherapy. We conducted a cross-sectional survey of 68 physicians and nurses from 9 institutions in the Dana-Farber Cancer Institute Acute Lymphoblastic Leukemia Consortium. The inter-individual approach to patient education is variable and may consist of handouts, treatment calendars, and discussions. The extent of teaching often varies depending on a provider's subjective assessment of a family's needs. Twenty-five percent of providers suggested standardizing patient teaching. When developing educational models, care teams should consider approaches that (a) objectively identify families in need of extensive teaching, (b) designate allotted teaching time by nursing staff during clinic visits, and (c) maintain the variation and dynamism that informs a successful provider-patient relationship.

Original languageEnglish (US)
Pages (from-to)e1-e6
JournalJournal of Pediatric Health Care
Volume31
Issue number1
DOIs
StatePublished - Jan 1 2017
Externally publishedYes

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Keywords

  • adherence
  • cancer care delivery
  • leukemia
  • patient education
  • Pediatric

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

Cite this

Kahn, J. M., Athale, U. H., Clavell, L. A., Cole, P. D., Leclerc, J. M., Laverdiere, C., Michon, B., Schorin, M. A., Welch, J. J. G., Sallan, S. E., Silverman, L. B., & Kelly, K. M. (2017). How Variable Is Our Delivery of Information? Approaches to Patient Education About Oral Chemotherapy in the Pediatric Oncology Clinic. Journal of Pediatric Health Care, 31(1), e1-e6. https://doi.org/10.1016/j.pedhc.2016.06.004