Function and well-being in ambulatory children with cerebral palsy

Marinis Pirpiris, Philip E. Gates, James J. McCarthy, Jacques D'Astous, Chester Tylkowksi, James O. Sanders, Fred J. Dorey, Sheryl Ostendorff, Gilda Robles, Christine Caron, Norman Y. Otsuka

Research output: Contribution to journalArticle

56 Scopus citations

Abstract

The purpose of this study was to determine whether there is a significant association between function and well-being in children with cerebral palsy. To determine this, the authors used validated measures of function (Gillette Functional Assessment Questionnaire, Gross Motor Function Classification System, Gross Motor Function Measure, and walking speed) and correlated them to health-related quality of life (HRQOL) measures (Pediatric Outcomes Data Collection Instrument, Pediatric Quality of Life instrument). In a cross-sectional study of ambulatory children with mild to moderate cerebral palsy aged 10.2 ± 3.2 years, mild to moderate decreases in function were found when compared with normative data. As the assessment of HRQOL comprises both functional well-being and psychosocial well-being, the authors decided to specify the aspect of well-being to which they were referring. It was found that the child's function was not correlated to psychosocial well-being. The children with mild cerebral palsy had greater effects on their psychosocial well-being than would be predicted by their functional disability. Functional measures were good at predicting the functional well-being but were weak at predicting the psychosocial arm of well-being.

Original languageEnglish (US)
Pages (from-to)119-124
Number of pages6
JournalJournal of Pediatric Orthopaedics
Volume26
Issue number1
DOIs
Publication statusPublished - Jan 1 2006

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Keywords

  • Cerebral palsy
  • FAQ
  • Function
  • GMFCS
  • GMFM
  • Health related quality of life
  • Outcome measures
  • PODCI
  • PedsQL
  • Wellbeing

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Orthopedics and Sports Medicine

Cite this

Pirpiris, M., Gates, P. E., McCarthy, J. J., D'Astous, J., Tylkowksi, C., Sanders, J. O., ... Otsuka, N. Y. (2006). Function and well-being in ambulatory children with cerebral palsy. Journal of Pediatric Orthopaedics, 26(1), 119-124. https://doi.org/10.1097/01.bpo.0000191553.26574.27