Does pediatric home care make a difference for children with chronic illness? Findings from the pediatric ambulatory care treatment study

Ruth E. K. Stein, D. J. Jessop

Research output: Contribution to journalArticle

116 Citations (Scopus)

Abstract

The ongoing care needed by children with chronic physical illness is a topic of national concern. The Pediatric Ambulatory Care Treatment Study (PACTS) is a classic pretest-posttest randomized experiment designed to evaluate a Pediatric Home Care (PHC) program in which an interdisciplinary team provides comprehensive primary health care, support, coordination, patient advocacy, and education to chronically ill children and their families. Home interviews were conducted by an independent research team with the 219 families at enrollment, 6 months, and 1 year; 80% completed all three interviews. Analyses indicate that pediatric home care is effective in improving the satisfaction of the family with care, in improving the child's psychological adjustment, and in lessening the psychiatric symptoms of the mother. The functional status of the children was equally well maintained in both groups, and there was no significant difference in the impact of the illness on the family between the two groups. There are indications that there may be a dose-related effect with respect to the child's psychological adjustment with those in the program for the longest period of time showing the greatest benefit. Such a home care program can be an effective intervention for minimizing the social and psychological consequences of chronic illness.

Original languageEnglish (US)
Pages (from-to)845-853
Number of pages9
JournalPediatrics
Volume73
Issue number6
StatePublished - 1984

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Home Care Services
Ambulatory Care
Chronic Disease
Pediatrics
Comprehensive Health Care
Interviews
Patient Advocacy
Patient Education
Therapeutics
Child Care
Psychiatry
Primary Health Care
Mothers
Psychology
Research
Emotional Adjustment

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

Cite this

Does pediatric home care make a difference for children with chronic illness? Findings from the pediatric ambulatory care treatment study. / Stein, Ruth E. K.; Jessop, D. J.

In: Pediatrics, Vol. 73, No. 6, 1984, p. 845-853.

Research output: Contribution to journalArticle

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