Developing a measure to assess attitudes toward epilepsy in the US population

Colleen A. DiIorio, Rosemarie Kobau, E. Wayne Holden, Judith M. Berkowitz, Stephanie L. Kamin, Richard F. Antonak, Joan K. Austin, Gus A. Baker, Laurie J. Bauman, Frank Gilliam, David J. Thurman, Patricia H. Price

Research output: Contribution to journalArticle

38 Citations (Scopus)

Abstract

The aim of this study was to develop an instrument to measure the US public's attitudes toward people with epilepsy and to assess the initial reliability and validity of the instrument. A 46-item attitudinal instrument was developed and tested using a proportional, stratified, national, random-digit dial household telephone survey of adults aged ≥ 18 (n = 758). Exploratory factor analyses revealed four underlying constructs that accounted for 34.4% of the variance in the factor analysis: Negative stereotypes (α = 0.73); risk and safety concerns (α = 0.85); work and role expectations (α = 0.76); and personal fear and social avoidance (α = 0.79). Knowledge was also assessed; participants with less knowledge about epilepsy had more negative attitudes. The results of these analyses provided evidence for reliability and construct validity of the instrument. Additional tests of the reliability, validity, and factor structure of the scales are necessary to refine the instrument.

Original languageEnglish (US)
Pages (from-to)965-975
Number of pages11
JournalEpilepsy and Behavior
Volume5
Issue number6
DOIs
StatePublished - Dec 2004

Fingerprint

Reproducibility of Results
Epilepsy
Statistical Factor Analysis
Population
Telephone
Fear
Safety

Keywords

  • Attitude assessment
  • Epilepsy
  • Knowledge assessment
  • Scale development
  • Stigma

ASJC Scopus subject areas

  • Clinical Neurology
  • Behavioral Neuroscience
  • Neurology

Cite this

DiIorio, C. A., Kobau, R., Holden, E. W., Berkowitz, J. M., Kamin, S. L., Antonak, R. F., ... Price, P. H. (2004). Developing a measure to assess attitudes toward epilepsy in the US population. Epilepsy and Behavior, 5(6), 965-975. https://doi.org/10.1016/j.yebeh.2004.08.020

Developing a measure to assess attitudes toward epilepsy in the US population. / DiIorio, Colleen A.; Kobau, Rosemarie; Holden, E. Wayne; Berkowitz, Judith M.; Kamin, Stephanie L.; Antonak, Richard F.; Austin, Joan K.; Baker, Gus A.; Bauman, Laurie J.; Gilliam, Frank; Thurman, David J.; Price, Patricia H.

In: Epilepsy and Behavior, Vol. 5, No. 6, 12.2004, p. 965-975.

Research output: Contribution to journalArticle

DiIorio, CA, Kobau, R, Holden, EW, Berkowitz, JM, Kamin, SL, Antonak, RF, Austin, JK, Baker, GA, Bauman, LJ, Gilliam, F, Thurman, DJ & Price, PH 2004, 'Developing a measure to assess attitudes toward epilepsy in the US population', Epilepsy and Behavior, vol. 5, no. 6, pp. 965-975. https://doi.org/10.1016/j.yebeh.2004.08.020
DiIorio CA, Kobau R, Holden EW, Berkowitz JM, Kamin SL, Antonak RF et al. Developing a measure to assess attitudes toward epilepsy in the US population. Epilepsy and Behavior. 2004 Dec;5(6):965-975. https://doi.org/10.1016/j.yebeh.2004.08.020
DiIorio, Colleen A. ; Kobau, Rosemarie ; Holden, E. Wayne ; Berkowitz, Judith M. ; Kamin, Stephanie L. ; Antonak, Richard F. ; Austin, Joan K. ; Baker, Gus A. ; Bauman, Laurie J. ; Gilliam, Frank ; Thurman, David J. ; Price, Patricia H. / Developing a measure to assess attitudes toward epilepsy in the US population. In: Epilepsy and Behavior. 2004 ; Vol. 5, No. 6. pp. 965-975.
@article{bd6ce826747d48a08a211a2c1722e590,
title = "Developing a measure to assess attitudes toward epilepsy in the US population",
abstract = "The aim of this study was to develop an instrument to measure the US public's attitudes toward people with epilepsy and to assess the initial reliability and validity of the instrument. A 46-item attitudinal instrument was developed and tested using a proportional, stratified, national, random-digit dial household telephone survey of adults aged ≥ 18 (n = 758). Exploratory factor analyses revealed four underlying constructs that accounted for 34.4{\%} of the variance in the factor analysis: Negative stereotypes (α = 0.73); risk and safety concerns (α = 0.85); work and role expectations (α = 0.76); and personal fear and social avoidance (α = 0.79). Knowledge was also assessed; participants with less knowledge about epilepsy had more negative attitudes. The results of these analyses provided evidence for reliability and construct validity of the instrument. Additional tests of the reliability, validity, and factor structure of the scales are necessary to refine the instrument.",
keywords = "Attitude assessment, Epilepsy, Knowledge assessment, Scale development, Stigma",
author = "DiIorio, {Colleen A.} and Rosemarie Kobau and Holden, {E. Wayne} and Berkowitz, {Judith M.} and Kamin, {Stephanie L.} and Antonak, {Richard F.} and Austin, {Joan K.} and Baker, {Gus A.} and Bauman, {Laurie J.} and Frank Gilliam and Thurman, {David J.} and Price, {Patricia H.}",
year = "2004",
month = "12",
doi = "10.1016/j.yebeh.2004.08.020",
language = "English (US)",
volume = "5",
pages = "965--975",
journal = "Epilepsy and Behavior",
issn = "1525-5050",
publisher = "Academic Press Inc.",
number = "6",

}

TY - JOUR

T1 - Developing a measure to assess attitudes toward epilepsy in the US population

AU - DiIorio, Colleen A.

AU - Kobau, Rosemarie

AU - Holden, E. Wayne

AU - Berkowitz, Judith M.

AU - Kamin, Stephanie L.

AU - Antonak, Richard F.

AU - Austin, Joan K.

AU - Baker, Gus A.

AU - Bauman, Laurie J.

AU - Gilliam, Frank

AU - Thurman, David J.

AU - Price, Patricia H.

PY - 2004/12

Y1 - 2004/12

N2 - The aim of this study was to develop an instrument to measure the US public's attitudes toward people with epilepsy and to assess the initial reliability and validity of the instrument. A 46-item attitudinal instrument was developed and tested using a proportional, stratified, national, random-digit dial household telephone survey of adults aged ≥ 18 (n = 758). Exploratory factor analyses revealed four underlying constructs that accounted for 34.4% of the variance in the factor analysis: Negative stereotypes (α = 0.73); risk and safety concerns (α = 0.85); work and role expectations (α = 0.76); and personal fear and social avoidance (α = 0.79). Knowledge was also assessed; participants with less knowledge about epilepsy had more negative attitudes. The results of these analyses provided evidence for reliability and construct validity of the instrument. Additional tests of the reliability, validity, and factor structure of the scales are necessary to refine the instrument.

AB - The aim of this study was to develop an instrument to measure the US public's attitudes toward people with epilepsy and to assess the initial reliability and validity of the instrument. A 46-item attitudinal instrument was developed and tested using a proportional, stratified, national, random-digit dial household telephone survey of adults aged ≥ 18 (n = 758). Exploratory factor analyses revealed four underlying constructs that accounted for 34.4% of the variance in the factor analysis: Negative stereotypes (α = 0.73); risk and safety concerns (α = 0.85); work and role expectations (α = 0.76); and personal fear and social avoidance (α = 0.79). Knowledge was also assessed; participants with less knowledge about epilepsy had more negative attitudes. The results of these analyses provided evidence for reliability and construct validity of the instrument. Additional tests of the reliability, validity, and factor structure of the scales are necessary to refine the instrument.

KW - Attitude assessment

KW - Epilepsy

KW - Knowledge assessment

KW - Scale development

KW - Stigma

UR - http://www.scopus.com/inward/record.url?scp=10844219802&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=10844219802&partnerID=8YFLogxK

U2 - 10.1016/j.yebeh.2004.08.020

DO - 10.1016/j.yebeh.2004.08.020

M3 - Article

C2 - 15582846

AN - SCOPUS:10844219802

VL - 5

SP - 965

EP - 975

JO - Epilepsy and Behavior

JF - Epilepsy and Behavior

SN - 1525-5050

IS - 6

ER -