Decisional Control Preferences in the Hispanic Population in the Bronx

Jhosselini Cardenas, Pamela Infante, Abel Infante, Elizabeth J. Chuang, Peter A. Selwyn

Research output: Contribution to journalArticle

Abstract

Hispanic Americans are among the fastest growing minority groups in the USA, and understanding their preferences for medical decision-making and information sharing is imperative to provide high quality end of life care. Studies exploring these decision control preferences (DCPs) are limited and found inconsistent results. (1) To measure DCPs of Hispanic patients in the Bronx. (2) To measure disclosure of information preferences of Hispanic patients in the Bronx. This is a cross-sectional survey. One hundred nineteen cancer patients who self-identified as Hispanic and were waiting at the oncology clinic at Montefiore Medical Center Cancer Center. Proportions of patients endorsing DCPs and disclosure of information preferences are reported. The relationship between patient characteristics and DCPs was tested using chi-squared tests of homogeneity. The majority (63, 52.9%) preferred shared decision-making with their doctors, families or both, while 46 (38.7%) had an active decision-making style. A minority (9, 7.6%) had a passive decision-making style, deferring to their families, and only 1 (0.8%) deferring to the physician. No demographic characteristics significantly predicted DCPs. The majority of patients agreed or strongly agreed that they wanted to hear all of the information regarding their diagnosis (94%), treatment options (94%), treatment expectations (92%), and treatment risks and benefits (96%). These results confirm our hypothesis that most Hispanic patients prefer either an active or shared decision-making process rather than a passive decision-making process. Most patients prefer disclosure of diagnosis, prognosis, and plan.

Original languageEnglish (US)
Pages (from-to)1-6
Number of pages6
JournalJournal of Cancer Education
DOIs
StateAccepted/In press - Feb 9 2018

Fingerprint

Hispanic Americans
Decision Making
Disclosure
Population
Patient Preference
Minority Groups
Terminal Care
Information Dissemination
Neoplasms
Therapeutics
Cross-Sectional Studies
Quality of Life
Demography
Physicians

Keywords

  • Advanced cancer
  • Health communication
  • Healthcare disparities
  • Hispanic Americans
  • Palliative care

ASJC Scopus subject areas

  • Oncology
  • Public Health, Environmental and Occupational Health

Cite this

Decisional Control Preferences in the Hispanic Population in the Bronx. / Cardenas, Jhosselini; Infante, Pamela; Infante, Abel; Chuang, Elizabeth J.; Selwyn, Peter A.

In: Journal of Cancer Education, 09.02.2018, p. 1-6.

Research output: Contribution to journalArticle

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