Community needs, concerns, and perceptions about health research: Findings from the clinical and translational science award sentinel network

Linda B. Cottler, Donna Jo McCloskey, Sergio Aguilar-Gaxiola, Nancy M. Bennett, Hal Strelnick, Molly Dwyer-White, Deborah E. Collyar, Shaun Ajinkya, Sarena D. Seifer, Catina Callahan O'Leary, Catherine W. Striley, Bradley Evanoff

Research output: Contribution to journalArticle

42 Scopus citations

Abstract

Objectives. We used results generated from the first study of the National Institutes of Health Sentinel Network to understand health concerns and perceptions of research among underrepresented groups such as women, the elderly, racial/ethnic groups, and rural populations. Methods. Investigators at 5 Sentinel Network sites and 2 community-focused national organizations developed a common assessment tool used by community health workers to assess research perceptions, health concerns, and conditions. Results. Among 5979 individuals assessed, the top 5 health concerns were hypertension, diabetes, cancer, weight, and heart problems; hypertension was the most common self-reported condition. Levels of interest in research participation ranged from 70.1% among those in the "other" racial/ethnic category to 91.0% among African Americans. Overall, African Americans were more likely than members of other racial/ethnic groups to be interested in studies requiring blood samples (82.6%), genetic samples (76.9%), or medical records (77.2%); staying overnight in a hospital (70.5%); and use of medical equipment (75.4%). Conclusions. Top health concerns were consistent across geographic areas. African Americans reported more willingness to participate in research even if it required blood samples or genetic testing.

Original languageEnglish (US)
Pages (from-to)1685-1692
Number of pages8
JournalAmerican journal of public health
Volume103
Issue number9
DOIs
StatePublished - Sep 1 2013

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

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    Cottler, L. B., McCloskey, D. J., Aguilar-Gaxiola, S., Bennett, N. M., Strelnick, H., Dwyer-White, M., Collyar, D. E., Ajinkya, S., Seifer, S. D., O'Leary, C. C., Striley, C. W., & Evanoff, B. (2013). Community needs, concerns, and perceptions about health research: Findings from the clinical and translational science award sentinel network. American journal of public health, 103(9), 1685-1692. https://doi.org/10.2105/AJPH.2012.300941