Clarifying quality of life assessment: Do theoretical models capture the underlying cognitive processes?

Elsbeth F. Bloem, Florence J. Van Zuuren, Margot A. Koeneman, Bruce D. Rapkin, Mechteld R M Visser, Caro C E Koning, Mirjam A G Sprangers

Research output: Contribution to journalArticle

25 Citations (Scopus)

Abstract

Objective: To develop an analysis scheme capturing the cognitive processes underlying QoL assessment to increase our understanding on how to interpret responses to QoL items. Tourangeau et al.'s (The psychology of survey response, 2000) and Rapkin and Schwartz' (Health Qual Life Outcomes 2:14, 2004) cognitive process models form the basis for this analysis scheme. Methods: We conducted think aloud interviews with six cancer patients prior to and following radiotherapy to elicit the cognitive processes underlying the assessment of 7 EORTC QLQ-C30 items. Content analysis was carried out by two to four researchers independently. Eighty text fragments were analyzed inductively and combined in an iterative process with deductive analyses based on both models. Results: We have developed a comprehensive analysis scheme feasible for analyzing the cognitive processes underlying QoL assessment qualitatively. All cognitive components of both models could be distinguished in our data. The cognitive component 'reporting and response selection' needed extension to fully capture the cognitive processes used. Conclusion: The two models combined are useful in describing the cognitive processes cancer patients use in answering QoL items, and as such facilitate insight into patients' self-reported QoL assessments. Interestingly, the content of the cognitive processes not only differed between patients but also between items within patients and over time.

Original languageEnglish (US)
Pages (from-to)1093-1102
Number of pages10
JournalQuality of Life Research
Volume17
Issue number8
DOIs
StatePublished - Oct 2008
Externally publishedYes

Fingerprint

Theoretical Models
Quality of Life
Process Assessment (Health Care)
Neoplasms
Radiotherapy
Research Personnel
Interviews
Psychology
Health

Keywords

  • Cancer
  • Cognitive interviews
  • Cognitive processes
  • Qualitative research
  • Quality of life

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

Cite this

Bloem, E. F., Van Zuuren, F. J., Koeneman, M. A., Rapkin, B. D., Visser, M. R. M., Koning, C. C. E., & Sprangers, M. A. G. (2008). Clarifying quality of life assessment: Do theoretical models capture the underlying cognitive processes? Quality of Life Research, 17(8), 1093-1102. https://doi.org/10.1007/s11136-008-9380-z

Clarifying quality of life assessment : Do theoretical models capture the underlying cognitive processes? / Bloem, Elsbeth F.; Van Zuuren, Florence J.; Koeneman, Margot A.; Rapkin, Bruce D.; Visser, Mechteld R M; Koning, Caro C E; Sprangers, Mirjam A G.

In: Quality of Life Research, Vol. 17, No. 8, 10.2008, p. 1093-1102.

Research output: Contribution to journalArticle

Bloem, EF, Van Zuuren, FJ, Koeneman, MA, Rapkin, BD, Visser, MRM, Koning, CCE & Sprangers, MAG 2008, 'Clarifying quality of life assessment: Do theoretical models capture the underlying cognitive processes?', Quality of Life Research, vol. 17, no. 8, pp. 1093-1102. https://doi.org/10.1007/s11136-008-9380-z
Bloem, Elsbeth F. ; Van Zuuren, Florence J. ; Koeneman, Margot A. ; Rapkin, Bruce D. ; Visser, Mechteld R M ; Koning, Caro C E ; Sprangers, Mirjam A G. / Clarifying quality of life assessment : Do theoretical models capture the underlying cognitive processes?. In: Quality of Life Research. 2008 ; Vol. 17, No. 8. pp. 1093-1102.
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