Challenges of Pre- and Post-Test Counseling for Orthodox Jewish Individuals in the Premarital Phase

E. Rose, N. Schreiber-Agus, K. Bajaj, Susan D. Klugman, T. Goldwaser

Research output: Contribution to journalArticle

3 Citations (Scopus)

Abstract

The Jewish community has traditionally taken ownership of its health, and has taken great strides to raise awareness about genetic issues that affect the community, such as Tay-Sachs disease and Hereditary Breast and Ovarian Cancer syndrome. Thanks in part to these heightened awareness efforts, many Orthodox Jewish individuals are now using genetics services as they begin to plan their families. Due to unique cultural and religious beliefs and perceptions, the Orthodox Jewish patients who seek genetic counseling face many barriers to a successful counseling session, and often seek the guidance of programs such as the Program for Jewish Genetic Health (PJGH). In this article, we present clinical vignettes from the PJGH’s clinical affiliate, the Reproductive Genetics practice at the Montefiore Medical Center. These cases highlight unique features of contemporary premarital counseling and screening within the Orthodox Jewish Community, including concerns surrounding stigma, disclosure, “marriageability,” the use of reproductive technologies, and the desire to include a third party in decision making. Our vignettes demonstrate the importance of culturally-sensitive counseling. We provide strategies and points to consider when addressing the challenges of pre- and post-test counseling as it relates to genetic testing in this population.

Original languageEnglish (US)
Pages (from-to)18-24
Number of pages7
JournalJournal of Genetic Counseling
Volume25
Issue number1
DOIs
StatePublished - Feb 1 2016

Fingerprint

Counseling
Hereditary Breast and Ovarian Cancer Syndrome
Tay-Sachs Disease
Genetic Services
Reproductive Techniques
Ownership
Genetic Counseling
Health
Disclosure
Genetic Testing
Religion
Decision Making
Population

Keywords

  • Genetic counseling
  • Genetics
  • Jewish law
  • Orthodox Jewish

ASJC Scopus subject areas

  • Genetics(clinical)

Cite this

Challenges of Pre- and Post-Test Counseling for Orthodox Jewish Individuals in the Premarital Phase. / Rose, E.; Schreiber-Agus, N.; Bajaj, K.; Klugman, Susan D.; Goldwaser, T.

In: Journal of Genetic Counseling, Vol. 25, No. 1, 01.02.2016, p. 18-24.

Research output: Contribution to journalArticle

Rose, E. ; Schreiber-Agus, N. ; Bajaj, K. ; Klugman, Susan D. ; Goldwaser, T. / Challenges of Pre- and Post-Test Counseling for Orthodox Jewish Individuals in the Premarital Phase. In: Journal of Genetic Counseling. 2016 ; Vol. 25, No. 1. pp. 18-24.
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