Application of Community-Based Participatory Research Methods to a Study of Complementary Medicine Interventions at End of Life

Anna Leila Williams, Peter A. Selwyn, Ruth Mccorkle, Susan Molde, Lauren Liberti, David L. Katz

Research output: Contribution to journalArticle

11 Scopus citations

Abstract

Community-based participatory research (CBPR) principles can be successfully applied to the design and implementation of a complementary medicine study for adults with end-stage AIDS. The Yale Prevention Research Center partnered with Leeway, Inc., an AIDS-dedicated nursing facility, and other academic and clinical entities to conduct a randomized, controlled pilot trial of meditation and massage on quality of life at the end of life. Using CBPR principles, a methodology was developed that was scientifically rigorous, highly respectful, and acceptable to the 91% minority study population. Using continuous, open communication among all involved parties, challenges were satisfactorily addressed in a timely manner. Fifty-eight residents (97% of those eligible) with end-stage AIDS participated from November 2001 to September 2003. Subjects received 1-month interventions of meditation, massage, combined meditation and massage, or standard care. The study of quality-of-life in end-stage AIDS poses unique challenges well met by applying CBPR principles to an academic-community research partnership.

Original languageEnglish (US)
Pages (from-to)91-104
Number of pages14
JournalComplementary Health Practice Review
Volume10
Issue number2
DOIs
StatePublished - 2005

Keywords

  • AIDS
  • community-based participatory research
  • end of life
  • massage
  • meditation

ASJC Scopus subject areas

  • Complementary and alternative medicine

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