Administrative Data Sets and Health Services Research on Hemoglobinopathies. A Review of the Literature

Scott D. Grosse, Sheree L. Boulet, Djesika D. Amendah, Suzette Olu Busola Oyeku

Research output: Contribution to journalArticle

43 Citations (Scopus)

Abstract

Context: Large administrative healthcare data sets are an important source of data for health services research on sickle cell disease (SCD) and thalassemia. This paper identifies and describes major U.S. healthcare administrative databases and their use in published health services research on hemoglobinopathies. Evidence acquisition: Publications that used U.S. administrative healthcare data sets to assess healthcare use or expenditures were identified through PubMed searches using key words for SCD and either costs, expenditures, or hospital discharges; no additional articles were identified by using thalassemia as a key word. Additional articles were identified through manual searches of related articles or reference lists. Evidence synthesis: A total of 26 original health services research articles were identified. The types of administrative data used for health services research on hemoglobinopathies included federal- and state-specific hospital discharge data sets and public and private health insurance claims databases. Gaps in recent health services research on hemoglobin disorders included a paucity of research related to thalassemia, few studies of adults with hemoglobinopathies, and few studies focusing on emergency department or outpatient clinic use. Conclusions: Administrative data sets provide a unique means to study healthcare use among people with SCD or thalassemia because of the ability to examine large sample sizes at fairly low cost, resulting in greater generalizability than is the case with clinic-based data. Limitations of administrative data in general include potential misclassification, under-reporting, and lack of sociodemographic information.

Original languageEnglish (US)
JournalAmerican Journal of Preventive Medicine
Volume38
Issue number4 SUPPL.
DOIs
StatePublished - Apr 2010

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Hemoglobinopathies
Health Services Research
Thalassemia
Delivery of Health Care
Sickle Cell Anemia
Health Expenditures
Databases
State Hospitals
Cost of Illness
Information Storage and Retrieval
Health Insurance
Ambulatory Care Facilities
PubMed
Sample Size
Publications
Hospital Emergency Service
Hemoglobins
Public Health
Datasets
Costs and Cost Analysis

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health
  • Epidemiology

Cite this

Administrative Data Sets and Health Services Research on Hemoglobinopathies. A Review of the Literature. / Grosse, Scott D.; Boulet, Sheree L.; Amendah, Djesika D.; Oyeku, Suzette Olu Busola.

In: American Journal of Preventive Medicine, Vol. 38, No. 4 SUPPL., 04.2010.

Research output: Contribution to journalArticle

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