"a place at the table: " A qualitative analysis of community board members' experiences with academic HIV/AIDS research

Stella Safo, Chinazo O. Cunningham, Alice Beckman, Lorlette Haughton, Joanna L. Starrels

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

Background: Community advisory boards (CAB) are proposed as one mechanism to carry out successful community based participatory research (CBPR), but the presence of CABs may be insufficient to optimize academic-community partnerships. Methods: We conducted semi-structured interviews with minority members of a CAB partnered with a HIV/AIDS research center and identified three themes. Results: First, lack of trust in researchers included two subthemes: researchers' lacked respect for community-based organizations' (CBO's) interests and paid inadequate attention to building trust. Second, power imbalance included three subthemes: CAB members felt like inferior "token" members, felt that a lack of communication led to disempowerment, and held preconceived beliefs of researchers that led to perceived power imbalance. Third, CAB members suggested best practices, including using collaborations to build trust, actively allocating power, and sharing tangible research benefits with CBOs. Conclusions: Our findings indicate that CABs must be founded on trust and instilled with power to meet the tenets of CBPR.

Original languageEnglish (US)
Article number80
JournalBMC Medical Research Methodology
Volume16
Issue number1
DOIs
StatePublished - Jul 11 2016

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Acquired Immunodeficiency Syndrome
HIV
Research
Community-Based Participatory Research
Research Personnel
Practice Guidelines
Communication
Organizations
Interviews
Power (Psychology)
cellulose acetate-butyrate

Keywords

  • Academic-community partnerships
  • Community advisory boards
  • Community based participatory research
  • HIV/AIDS

ASJC Scopus subject areas

  • Health Informatics
  • Epidemiology

Cite this

"a place at the table : " A qualitative analysis of community board members' experiences with academic HIV/AIDS research. / Safo, Stella; Cunningham, Chinazo O.; Beckman, Alice; Haughton, Lorlette; Starrels, Joanna L.

In: BMC Medical Research Methodology, Vol. 16, No. 1, 80, 11.07.2016.

Research output: Contribution to journalArticle

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